jueves, 26 de junio de 2008


Había dejado de escribir. La verdad es que fue principalmente por una cuestión de tiempo. Entre el trabajo, mi niño y la agrupación no queda mucho tiempo disponible, pero todo el esfuerzo vale la pena.

Apandia es hoy una agrupación consolidada: Tenemos sede, y nos adjudicamos un FONADIS que nos ha permitido implementar la primera sala de rehabilitación para niños con espectro autista de Iquique. Este proyecto beneficiará a los cerca de 30 niños que forman parte de nuestra organización y a sus familias, capacitando a sus padres como co-terapeutas y ofreciendo apoyo multidisciplinario para los niños. Es un tremendo orgullo para los 30 padres que formamos parte de Apandia: Hemos dejado de ser esos padres pasivos que se lamentran por no poder cubrir las necesidades de sus hijos y estamos en camino de transformarnos en verdaderas herramienta de apoyo para su rehabilitación.

Mi Felipe también ha recorrido un camino largo. Hoy se encuentra asistiendo a UPANAC, un centro de atención especializada para niños con trastornos de la comunicación....en pocas palabras una escuela especial pagada. En Noviembre del 2007 el diagnóstico de Felipe cambió derechamente a Espectro Autista como parte de un TGD, la verdad no fue un balde de agua fría pues el corazón me lo gritaba hace tiempo. A pesar de que tiene 4 años y 3 meses y aún no tiene nada de lenguaje y no deja los pañales, hemos visto cambios lentos pero no menos importantes: Fija mas la mirada, se conecta un poco más, ha mejorado el interés comunicativo y los gestos....detalles para la mayoría de los padres....verdaderos milagros para nosotros.

El camino es duro, pero siempre hay recompensas para el alma.

29 comentarios:

La Mamá dijo...

te felicito por lo logrado, por lo por lograr, y... Vivan los milagros diarios, constantes, maravillosos, imperceptibles para la mayoría... eso nos hace especiales y a nuestros hijos pedacitos de cielo, como dice la canción. Ánimo y no te aflijas por los diagnósticos. Tu hijo no es un diagnóstico, simplemente denota la descripción de un momento. Nunca olvides que el límite de un niño es el cielo. UN ABRAZO Y TODA MI ADMIRACIÓN, Paula

Alma dijo...

Que lástima que aquellas que tenemos la suerte de tener hijos sin problemas no valoremos aquello, que hay padres que darían lo que fuera porque sus hijos les dijeran papa o mama al oído o que le reclaramaran porque su primito los empujó...
caí por casualidad buscando información para una niña que su hijo está entre disfasia y autismo (aun no lo diagnostica el neurólogo) no sabes como te admiro por ese tesón que le entregas a tu hijo, un abrazo grande aunque no te conozca y a Felipe que nació un seis de abril (el mío nació un siete de abril del 2006)

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